I can see where you got your expectations from. You should reach out to the researcher. Maybe they can tell you why it's not OSS. I'd not be surprised if it was some mix of medical devices being a special case, and the IP being owned by Microsoft.
I wrote Hayan Zhang the following Email with the subject line “Source code & schematics for Parkinson's device?”:
Hello Hayan Zhang,
I have read several articles about the “Emma device” you have built, but
could not find any details. Have you published source code & schematics?
The BBC has a GitHub repository for code related to the documentary. The
one open issue on it is from a person who wants to help their father who
has been affected by Parkinson's <https://github.com/bbc/MiD/issues/3>:
> I am hoping to design a similar item to help my father with both
> writing, and potentially in continuing other activities that his
> Parkinson's is starting to inhibit, and while the Big Life Fix episode
> covering it gave some hints at the details, there wasn't that much
> concrete information.
Since you seem to have zero interest in commercializing your findings, I
do not understand why the information on the details seems hard to find.
Have you published something (like a scientific article) on the subject?
